Challenged Hope

Grandmother raising Grandchildren with FASD in Hamilton Ontario Canada

FASD Day, September 9th

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It is FASD Day on September 9th!

FASD Day, September 9th

September 9th each year is FASD Day to promote awareness of the disorder

 

September 9th of each year is FASD Day. Someone recently texted me to ask if I was doing anything special to promote awareness of FASD on this special day. To my shame, I could not generate one idea of how to highlight FASD, the most preventable form of mental illness. For twenty years, I have raised grandchildren with FASD, so I cope with the disorder on a daily basis, but to create an advocating event, for me, proved impossible due to time and financial limitations.

So, today, September 9th 2015,  I am relying on this blog to advocate for me. It’s where I post content about FASD. Although getting people to read it can be a struggle in itself. To give you an idea of that struggle, take note of what happened regarding my previous blog post.

As a blogger advocating for FASD, I naturally joined Facebook groups to find members who do the same. And, when my teenage granddaughter, who has FASD, offered to advocate for students with FASD through strategies for teachers, and allowed her strategies to be posted on this blog, I was ecstatic. Is this how it works?—I thought—one person raises, the next generation advocates? Perhaps my twenty years of overwhelming stress is finally paying off!

FASD Day, September 9th.

Excited over her contribution, I turned to one FASD advocating Facebook group that boasts over seventeen thousand members, to post a request for members to read my granddaughter’s strategies then offer her encouragement to continue advocating. Naturally, I hoped they would also “share” or “like” the post, but a supportive comment would have sufficed.

No, I didn’t expect seventeen thousand people to respond to my blog post, but one would have been nice. But the reaction was a disappointing zip! Last time I checked, there were two comments, not from members of the Facebook group, but from friends who care. Of course, I appreciate their supportive comments, but where are the advocates? Isn’t that what FASD day is all about—promoting and advocating? If not one in seventeen thousand advocates are interested in supporting a newbie advocate like my granddaughter who struggles daily with FASD, why would we expect people who know little to nothing about FASD to show interest in the topic?

This turning of backs by people on the front line needs to end. So, fearing I might become one of them, while it is too late this year, I promise to promote awareness of FASD on FASD Day, September 9th 2016! Please join me!

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Author: whereasi

For over twenty years, I have parented four grandchildren with Fetal Alcohol Syndrome: a disorder caused by prenatal exposure to alcohol. Please read of our family struggles and challenges at http://www.challengedhope.com. My two ebook memoirs available on Amazon titled: Two Decades Of Diapers, and, Fetal Alcohol Syndrome: The Teen Years, describe the struggles my grandchildren and I experienced during their youth and teenage years. I have also written fiction, including a six-book English seaside series, titled, Under the Shanklin sky. I am now embarking on a new adventure creating children's picture books, designed specifically with kids with FAS in mind. The two main characters of the book are Strawberry & Cracker, twins with Fetal Alcohol Syndrome. The first titled The School Day focuses on the special supports the twins need at school for a successful outcome. The book is due out in the fall of 2017, to be followed by more in the series, all focused on the daily challenges faced by children with FAS. For more info, see my author blog at www.barbarastudham.com.

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