Challenged Hope

Grandmother raising Grandchildren with FASD in Hamilton Ontario Canada

The Dreaded Wait List

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Oh, the frustration!

When governments announce a new service to aid children with developmental disabilities, invariably the news quickly trickles down to caregivers overjoyed that “at last” someone has heard their pleas for support and acted accordingly.

The Dreaded Wait List

Trouble is, caregivers are often oblivious to the fact that the new service is bound to be underfunded, and therefore understaffed, causing long wait lists. Add to that, the fact that the child’s disability has to fit a long list of requirements to be eligible for the service, and that services cannot be “doubled-up” which means, should the child be receiving support from one agency, he cannot receive similar help from another. In addition, should an urgent case for the new resource surface, names on the non-urgent list are pushed down a space, making wait times even longer.

Oh, the frustration!

During my twenty years raising grandchildren with FAS, I learned not to hold my breath while waiting for services, especially where the Children’s Aid Society was concerned. Despite their frequent promises of support should I ever need it—which I often did—I was invariably brushed aside due to lack of funding, or told my requirements were outside of their service. Now, as my grandchildren approach adulthood, the DSO (Developmental Services Ontario) referrals for adult services come with guaranteed wait lists. Here we go, again!

FASD Pumpkin

The FASD Pumpkin: Remember some Trick or Treaters have mental challenges.

Be Patient!

Exercising patience while waiting for services is difficult, however, we can demonstrate patience toward all trick-or-treaters this Halloween by remembering there are children in our neighborhoods with developmental, physical, and mental disabilities, and act appropriately when they approach our doors. Despite my protests that my grandchildren are too old to knock on doors for candy, given their mental immaturity, they never outgrow Halloween, so I insist they at least dress the part, thereby giving householders a reason to hand over that much coveted chocolate bar. So, please, if you are approached by teens who you believe are well over the age of trick-or-treating, remember there could be an underlying health reason for their wanting to join in the neighborhood fun.

My author link: http://www.barbarastudham.com

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Author: whereasi

For over twenty years, I have parented four grandchildren with Fetal Alcohol Syndrome: a disorder caused by prenatal exposure to alcohol. Please read of our family struggles and challenges at http://www.challengedhope.com. My two ebook memoirs available on Amazon titled: Two Decades Of Diapers, and, Fetal Alcohol Syndrome: The Teen Years, describe the struggles my grandchildren and I experienced during their youth and teenage years. I have also written fiction, including a six-book English seaside series, titled, Under the Shanklin sky. I am now embarking on a new adventure creating children's picture books, designed specifically with kids with FAS in mind. The two main characters of the book are Strawberry & Cracker, twins with Fetal Alcohol Syndrome. The first titled The School Day focuses on the special supports the twins need at school for a successful outcome. The book is due out in the fall of 2017, to be followed by more in the series, all focused on the daily challenges faced by children with FAS. For more info, see my author blog at www.barbarastudham.com.

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