Challenged Hope

Grandmother raising Grandchildren with FASD in Hamilton Ontario Canada


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FASD Day, September 9th

It is FASD Day on September 9th!

FASD Day, September 9th

September 9th each year is FASD Day to promote awareness of the disorder

 

September 9th of each year is FASD Day. Someone recently texted me to ask if I was doing anything special to promote awareness of FASD on this special day. To my shame, I could not generate one idea of how to highlight FASD, the most preventable form of mental illness. For twenty years, I have raised grandchildren with FASD, so I cope with the disorder on a daily basis, but to create an advocating event, for me, proved impossible due to time and financial limitations.

So, today, September 9th 2015,  I am relying on this blog to advocate for me. It’s where I post content about FASD. Although getting people to read it can be a struggle in itself. To give you an idea of that struggle, take note of what happened regarding my previous blog post.

As a blogger advocating for FASD, I naturally joined Facebook groups to find members who do the same. And, when my teenage granddaughter, who has FASD, offered to advocate for students with FASD through strategies for teachers, and allowed her strategies to be posted on this blog, I was ecstatic. Is this how it works?—I thought—one person raises, the next generation advocates? Perhaps my twenty years of overwhelming stress is finally paying off!

FASD Day, September 9th.

Excited over her contribution, I turned to one FASD advocating Facebook group that boasts over seventeen thousand members, to post a request for members to read my granddaughter’s strategies then offer her encouragement to continue advocating. Naturally, I hoped they would also “share” or “like” the post, but a supportive comment would have sufficed.

No, I didn’t expect seventeen thousand people to respond to my blog post, but one would have been nice. But the reaction was a disappointing zip! Last time I checked, there were two comments, not from members of the Facebook group, but from friends who care. Of course, I appreciate their supportive comments, but where are the advocates? Isn’t that what FASD day is all about—promoting and advocating? If not one in seventeen thousand advocates are interested in supporting a newbie advocate like my granddaughter who struggles daily with FASD, why would we expect people who know little to nothing about FASD to show interest in the topic?

This turning of backs by people on the front line needs to end. So, fearing I might become one of them, while it is too late this year, I promise to promote awareness of FASD on FASD Day, September 9th 2016! Please join me!

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FASD Day Events

FASD Day Events

The following is a list of events supporting FASD Day, posted by Mark Courtepatte and Savanna Petriano on their website http://www.hamiltonfasdsupport.ca. Thanks, Mark and Savanna, for posting these events!

FASD Day Events

Please note the following events for this Wednesday Septhember 9th FASD Day.  We hope that you are able to attend one or more of the events, and that you share awareness with everyone you contact on September 9th.  (note: the following info is also on our website – FASD Day events tab  http://hamiltonfasdsupport.ca/14.html )

Every year on September 9th, International FASD Awareness Day is observed.  Proclamations are issued in countries, states, provinces, and towns all around the world.  Bells are rung at 9:09 a.m. in every time zone from New Zealand to Alaska.  People all around the world gather for events to raise awareness about the dangers of drinking during pregnancy and the plight of individuals and families who struggle with Fetal Alcohol Spectrum Disorders (FASD).  The first FASD day was celebrated on 9/9/99.  This day was chosen so that on the ninth day of the ninth month of the year, the world will remember that during the nine months of pregnancy a woman should abstain from alcohol.  Anytime is a good time to raise awareness about Fetal Alcohol Spectrum Disorders (FASD). (* our sincere thanks to Shelley Woon HWDSB for her above summary of FASD day)

 Events for Wednesday September 9th, 2015

  • Time:  10:00-11:00 a.m.

Have a coffee, meet the HWDSB FASD Team and learn more about the supports offered.

Location: Lobby of the HWDSB Education Center:  20 Education Ct, Hamilton (1 block past Limeridge Mall on the opposite side)

Map:https://goo.gl/maps/EQslu

  • Time: 3:30 pm – 5:30 p.m.

Youth & Parent Presentation ~ Reach For It!  ~ Camp Unity Halton

Rethink Your Drinking Campaign & Halton FASD Website Launch: www.haltonfasd.ca

  •  2nd Annual Zero Alcohol Drink Challenge ~ Local Bartenders Compete
  •  Presentations start at 4:15pm ~ Sharp! ~ Light Refreshments
  •  Parking $1.75 /hr – Free parking for Parents/Caregivers (get ticket inside Art Gallery)
  •  For more information please contact Sue Brooks sueb@rockonline.ca

Location: Art Gallery of Burlington, 1333 Lakeshore Road, Burlington ON

Map: https://goo.gl/maps/h7XBC

** ALSO – here is a link for an article on a family supporting FASD on the front page of the Burlington Post who will be presenting at the Art Gallery event http://edition.pagesuite-professional.co.uk/launch.aspx?eid=d9263170-0c50-48c8-9969-99e45b4cce14  (*sincere thanks to Mary Ann B of the Halton FASD Support Group for sharing the event and article)

  • Time: 6:00pm – 8:00 p.m.

The Light that Guides my way” – Book Launch by Adrienne Newport

“Ever since I was young,” she insists, “all I dreamt of was living in my own apartment and having my own cat.” Yet these days, her dreams are expanding: she now longs to travel and raise awareness by speaking about Fetal Alcohol Spectrum Disorder—or FASD for short. Meet Hamilton resident and emerging disability awareness advocate, Adrienne Newport.  Adrienne is also a member of our Youth & Siblings Support Group.  The Light that Guides My Way shares with intimacy and insight— and in her own words—the story of Adrienne’s struggle, aspirations and successes. Location: Immanuel Christian Reformed Church, 61 Mohawk Road West    RSVP to dmarcaccio@rygiel.caor call Serena at 905-525-4747 ext 205   Map: https://goo.gl/maps/dShD2

St. Thomas Ontario Events

9:09 a.m. 10th Anniversary of ringing of the Bells at St. Thomas City Hall for International FASD Awareness Day Location: Talbot St. St. Thomas.  Guests speaking: Mayor, Chief of Police, MPP, MP, OCYC & Health Unit.  (* Our sincere thanks for our Support Group member Ethel for providing the events info)

Regards, Mark and Savanna

Hamilton FASD Parent & Caregiver Support Group

eMail:      Hamilton.FASD@gmail.com

Website:  http://hamiltonfasdsupport.ca

Affiliate member of FASworld Canada