Challenged Hope

Grandmother raising Grandchildren with FASD in Hamilton Ontario Canada


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FASD VOICES

New Book: FASD VOICES

I am writing a new book titled (tentative) FASD VOICES, as I want to bring the voices of individuals with FASD, their caregivers, siblings, caseworkers and anyone else involved with FASD, to the global forefront. I have written two FASD memoirs Two Decades of Diapers, and, Fetal Alcohol Syndrome, The Teen Years. I also created the Strawberry & Cracker, Twins with Fetal Alcohol Syndrome, picture book series. 

The response so far regarding FASD VOICES has been positive and I hope to continue that momentum. So, if you are a person involved with FASD in any way, and would like your voice to be included in FASD VOICES, please use my contact page in the MENU bar and I will send you details. 

This book will make an excellent handout at FASD conferences, FASD presentations, to politicians, medical personnel, FASD caseworkers, teachers, etc., but it can’t be written without YOUR help. I need to hear your FASD experiences, challenges, struggles, hopes, prayers, positive and cherished moments of FASD, vents, needs, wishes, etc.  If you have an anecdote, comment, thought, idea, or any other voice you want heard, please contact me.

Pieces should be 50-500 words. Don’t worry if you have never written anything before. I want to keep it raw. Only your first initial of your name, and your province, state, county etc, will be shared. When complete, FASD VOICES will be available from Amazon. There is no pay-out to participants as all profits will go toward printing costs for books to be handed out at presentations. 

ASK YOURSELF — WHAT DO I WANT THE WORLD TO KNOW ABOUT FASD?

PLEASE CONTACT ME IF INTERESTED!

 

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Hamilton ON ODSP leaflet. www.challengedhope.com


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Hamilton ON ODSP Office/Changes

A Welcome Change to Hamilton ON ODSP Services!

Hamilton ON ODSP leaflet. www.challengedhope.com

Hamilton ON ODSP leaflet

I’m not conceited enough to believe that my post HERE had anything to do with the changes at the Hamilton ON ODSP office, but it is good to know that enough people complained about the service thereby causing changes to be implemented.

Hamilton ON ODSP Office/Changes

As you can see from a recent leaflet, ODSP is striving to improve their service. Always a good sign. Readers, don’t sit back on your laurels, however, or the service will slip again. Keep ODSP on its toes by continually voicing your complaints whenever they arise. The leaflet suggests you speak to a member of the management team if you are dissatisfied with the service. You can also visit the following link to complete a survey. 

ontario.ca/socialassistancesurvey
Barbara Studham’s bio.

For over twenty years, Barbara Studham has parented grandchildren diagnosed with Fetal Alcohol Syndrome. Her two memoirs Two Decades of Diapers, and, Fetal Alcohol Syndrome, The Teen Years, describe her challenges during their toddler years and teens. She has also written fiction, including a six-book series titled, Under The Shanklin Sky, set in the seaside town of Shanklin, on the Isle of Wight. She is currently creating a children’s FASD picture book series Strawberry & Cracker, Twins with Fetal Alcohol Syndrome. Now available is the first in the series titled THE SCHOOL DAY. The second in the series titled FIDGET! is soon to be released.

Barbara Studham’s books are available from AMAZON.

Author blog: http://www.barbarastudham.com

FASD blog: http://www.challengedhope.com

Amazon Author Page: http://www.amazon.com/author/barbarastudham


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A Mother’s Tears

The Window

The Window

The Window

I can’t believe I cried on the bus. It would not have happened if I had driven to my dental appointment, but, with traffic heavy and parking nonexistent in the downtown core, I use public transportation on dental day. 

After an intense tooth cleaning, and consultation, I caught the bus home. Five minutes into the drive, the bus stopped in dense traffic, and there it was … the window.

At the sight, my lips trembled. Sudden tears flowed down my cheeks. I could not hold back. Amid my horrendous embarrassment, I stared at the beast. It glared back, cold and indifferent. I imagined my daughter, standing there, smiling, as she had twenty years before.

The previous day she had given birth to her first child. At fifteen she had no idea of what the future held, yet she managed a smile as she spotted me approaching the hospital to visit her and my new grandson. Today, I cried on the bus at the memory of her at the hospital window, and recalled the trauma of the past two decades. 

To read of the details of what happened during those twenty years, read my two memoirs Two Decades of Diapers, and, Fetal Alcohol Syndrome: The Teen Years. If you are a caregiver to a child with FASD, you and your child would enjoy my children’s picture book titled, Strawberry & Cracker, Twins with Fetal Alcohol Syndrome.

Along with my fiction, my memoirs, and children’s book are available from your Amazon or the following link.

http://www.amazon.com/author/barbarastudham

 

 

 

 


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Danger of Pregnancy & Alcohol

Couples, please avoid alcohol during conception and pregnancy!

Wake up! to FAS

Wake up to issues associated with Fetal Alcohol Syndrome

Katie is a medical student enrolled in an Anatomy and Physiology class studying for her bachelor’s degree. She recently contacted me with information on avoiding alcohol during pregnancy. Katie explained that one of her goals is to share resources about having safe and healthy pregnancies before childbirth. She wanted to share her resource because it explores the dangers of consuming alcohol while pregnant that cause fetal alcohol syndrome.  I am happy to post Katie’s link on my FASD blog. To read her post in full, click the following link.

http://www.dwiminneapolislawyer.com/resources/drinking-alcohol-and-pregnancy/

If you would like to contact Katie for more information, please use the contact page on my blog, and I will forward your request on to Katie. Thank you, Katie, for reinforcing the dangers of drinking during conception and pregnancy.

 


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Parents Beware!

I never thought it would happen to me!

Despite the few months I babysat a six-month old child being raised by his grandparents, as a young mother, the thought of one day having to raise my own grandchildren, never entered my mind,  In Canada, a growing number of grandparents are now parenting and raising their grandchildren. So much so, that it is time government officials raised their heads out of the sand regarding the ability of grandparents to do so. Not all grandparents have the energy to raise their grandchildren and, if the child has a mental or physical infirmity, it can be nigh on impossible. Though it appears in the best interest of the child to be placed with family, growing up with grandparents is not necessarily the optimum option.

Let grandparents be grandparents!

Too often, children’s agencies take advantage of grandparents when at their most emotionally vulnerable—i.e. when they learn their grandchild is in need of a home. There is a growing need for available foster homes where the child can be nurtured by young caregivers who have energy and use contemporary parenting strategies. Despite the propaganda, not every child placed in foster care is subject to abuse. My personal experience with foster parents has been very positive. There are many compassionate foster parents in Canada willing to give children the care they need and deserve.

Parents Beware!

Two Decades Of Diapers

Two Decades Of Diapers

FAS: The Teen Years

Fetal Alcohol Syndrome: The Teen Years

So, parents of today, for various reasons, you might one day be faced with the decision to raise a grandchild. Life has a way of presenting us with disquieting choices that can change our lives forever. And if you believe it could never happen to you, read my two memoirs, Two Decades Of Diapers, and, Fetal Alcohol Syndrome: The Teen Years, which describe my twenty years raising four grandchildren with Fetal Alcohol Syndrome. Both are available in ebook format from your Amazon store, the following links, and many other ebook distributors.

 

 


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The Dreaded Wait List

Oh, the frustration!

When governments announce a new service to aid children with developmental disabilities, invariably the news quickly trickles down to caregivers overjoyed that “at last” someone has heard their pleas for support and acted accordingly.

The Dreaded Wait List

Trouble is, caregivers are often oblivious to the fact that the new service is bound to be underfunded, and therefore understaffed, causing long wait lists. Add to that, the fact that the child’s disability has to fit a long list of requirements to be eligible for the service, and that services cannot be “doubled-up” which means, should the child be receiving support from one agency, he cannot receive similar help from another. In addition, should an urgent case for the new resource surface, names on the non-urgent list are pushed down a space, making wait times even longer.

Oh, the frustration!

During my twenty years raising grandchildren with FAS, I learned not to hold my breath while waiting for services, especially where the Children’s Aid Society was concerned. Despite their frequent promises of support should I ever need it—which I often did—I was invariably brushed aside due to lack of funding, or told my requirements were outside of their service. Now, as my grandchildren approach adulthood, the DSO (Developmental Services Ontario) referrals for adult services come with guaranteed wait lists. Here we go, again!

FASD Pumpkin

The FASD Pumpkin: Remember some Trick or Treaters have mental challenges.

Be Patient!

Exercising patience while waiting for services is difficult, however, we can demonstrate patience toward all trick-or-treaters this Halloween by remembering there are children in our neighborhoods with developmental, physical, and mental disabilities, and act appropriately when they approach our doors. Despite my protests that my grandchildren are too old to knock on doors for candy, given their mental immaturity, they never outgrow Halloween, so I insist they at least dress the part, thereby giving householders a reason to hand over that much coveted chocolate bar. So, please, if you are approached by teens who you believe are well over the age of trick-or-treating, remember there could be an underlying health reason for their wanting to join in the neighborhood fun.

My author link: http://www.barbarastudham.com


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Pregnancy kits and FASD

Getting the FASD word out!

FASD 2016

FASD 2016. Speak Up, and make this year the last year for FASD.

One problem with FASD is, people are unaware it can be prevented, so here is a thought: One way to let mothers know how to keep their baby FASD free, is to print the words – AVOID ALCOHOL WHEN PREGNANT—not only on the packaging of pregnancy test kits, but on the testing unit itself. Though no method is foolproof, especially when the mother has drunk alcohol before realizing she is pregnant, this one could help. Having that advice printed clearly and in bold letters on the testing unit, could convince a woman who has just discovered she is pregnant, to abstain from alcohol during her pregnancy. What do you think?

A front line perspective on FASD

If you would like a front line perspective on FASD, read my two ebook memoirs, Two Decades of Diapers, and, Fetal Alcohol Syndrome: The Teen Years, both of which address my twenty years raising four grandchildren with Fetal Alcohol Syndrome. and available from your Amazon, these links, and many other ebook distributors. Both are only .99 cents (usd).

http://www.amazon.com/author/barbarastudham

https://www.store.kobobooks.com

http://www.barnesandnoble.com