Challenged Hope

Grandmother raising Grandchildren with FASD in Hamilton Ontario Canada


Leave a comment

Two new books in the series Strawberry and Cracker, Twins with Fetal Alcohol Syndrome, by Barbara Studham

New releases on AMAZON

The Birthday Bash

The Twins Learn Of Their Disorder

THE BIRTHDAY BASH

Strawberry and Cracker are twins with Fetal Alcohol Syndrome. They live with their grandma and her dog, Thunder.  In The Birthday Bash, the twins receive a party invitation from their big brother Rocky who lives with his foster parents. But, Grandma is nervous. The noise and liveliness associated with parties can overwhelm a child with Fetal Alcohol Syndrome and result in misbehavior or meltdowns. Rocky’s Foster dad, Sergio, suggests strategies for a successful celebration, but when the festivities begin, the stimulation escalates the twins’ behavior to the point of ruining Rocky’s party. With Strawberry’s attempt to start a food fight, the twins’ destruction of the decorations, and their howls at the noise of musical chairs, Grandma decides it is time to leave!

THE BIRTHDAY BASH is suitable for children ages 5-12. Available from AMAZON.
ISBN: 978-1-988092-15-7 Story by Barbara Studham, illustrated by Heather Lamb.

THE TWINS LEARN OF THEIR DISORDER

The Twins Learn of Their Disorder is one in the Strawberry & Cracker, Twins with Fetal Alcohol Syndrome series.  In the story, the twins’ recent medical evaluation resulted in a diagnosis of Fetal Alcohol Syndrome. Now, they are at their pediatrician’s office to learn of their disorder. When the doctor informs them of the diagnosis, the twins imagine whimsical and whacky problems associated with Fetal Alcohol Syndrome; however, the doctor helps them avoid panic through a positive and constructive discussion in her office. The Twins Learn of Their Disorder is a helpful teaching tool during discussion with a child about Fetal Alcohol Syndrome.

THE TWINS LEARN OF THEIR DISORDER is suitable for children ages 5-12. Available from AMAZON.
ISBN: 978-1-988092-17-1 Story and illustrations by Barbara Studham

Other books in the series Strawberry and Cracker, Twins with Fetal Alcohol Syndrome


Barbara Studham’s bio

For over twenty years, Barbara Studham has parented grandchildren diagnosed with Fetal Alcohol Syndrome. Her two memoirs: Two Decades of Diapers, and, Fetal Alcohol Syndrome, The Teen Years, describe her challenges during their toddler years and teens. She has also written fiction, including a six-book series titled, Under The Shanklin Sky, set in the seaside town of Shanklin, on the Isle of Wight. She is currently creating a children’s FASD picture book series Strawberry & Cracker, Twins with Fetal Alcohol Syndrome.

Barbara Studham’s books are available from AMAZON.
Author blog: http://www.barbarastudham.com
FASD blog: http://www.challengedhope.com
Amazon Author Page: www.amazon.com/author/barbarastudham
Advertisements


2 Comments

FASD VOICES

New Book: FASD VOICES

I am writing a new book titled (tentative) FASD VOICES, as I want to bring the voices of individuals with FASD, their caregivers, siblings, caseworkers and anyone else involved with FASD, to the global forefront. I have written two FASD memoirs Two Decades of Diapers, and, Fetal Alcohol Syndrome, The Teen Years. I also created the Strawberry & Cracker, Twins with Fetal Alcohol Syndrome, picture book series. 

The response so far regarding FASD VOICES has been positive and I hope to continue that momentum. So, if you are a person involved with FASD in any way, and would like your voice to be included in FASD VOICES, please use my contact page in the MENU bar and I will send you details. 

This book will make an excellent handout at FASD conferences, FASD presentations, to politicians, medical personnel, FASD caseworkers, teachers, etc., but it can’t be written without YOUR help. I need to hear your FASD experiences, challenges, struggles, hopes, prayers, positive and cherished moments of FASD, vents, needs, wishes, etc.  If you have an anecdote, comment, thought, idea, or any other voice you want heard, please contact me.

Pieces should be 50-500 words. Don’t worry if you have never written anything before. I want to keep it raw. Only your first initial of your name, and your province, state, county etc, will be shared. When complete, FASD VOICES will be available from Amazon. There is no pay-out to participants as all profits will go toward printing costs for books to be handed out at presentations. 

ASK YOURSELF — WHAT DO I WANT THE WORLD TO KNOW ABOUT FASD?

PLEASE CONTACT ME IF INTERESTED!

 


Leave a comment

FASD: Childhood Memories

Many children with FASD have fond memories of their childhoods.

Despite the challenges and struggles associated with parenting a child with FASD, the child will often remember their childhood with fondness. Despite the child’s complex behaviors involving meltdowns; screaming, and defiance, which the caregiver would rather forget, the child appears able to ignore the troubled times and recall happier moments.

For example, all four of my grandchildren with Fetal Alcohol Syndrome (FAS), who I parented from birth, are now teenagers. Their “do you remember when…” recollections include special family days at Port Dover, Wild Water Works, and Confederation Park. The play area at McDonald’s also holds fond memories, as does shopping at Walmart for new shoes, and toys at Christmas. Though I remember them being difficult to control during our outings, I’m pleased when their recollections include a portrayal of a happy me.

My two ebook memoirs on parenting grandchildren with FAS

are available at the following links, and many other ebook distributors.

http://www.amazon.com/author/barbarastudham

https://www.kobo.com

http://www.barnesandnoble.com

 


Leave a comment

Danger of Pregnancy & Alcohol

Couples, please avoid alcohol during conception and pregnancy!

Wake up! to FAS

Wake up to issues associated with Fetal Alcohol Syndrome

Katie is a medical student enrolled in an Anatomy and Physiology class studying for her bachelor’s degree. She recently contacted me with information on avoiding alcohol during pregnancy. Katie explained that one of her goals is to share resources about having safe and healthy pregnancies before childbirth. She wanted to share her resource because it explores the dangers of consuming alcohol while pregnant that cause fetal alcohol syndrome.  I am happy to post Katie’s link on my FASD blog. To read her post in full, click the following link.

http://www.dwiminneapolislawyer.com/resources/drinking-alcohol-and-pregnancy/

If you would like to contact Katie for more information, please use the contact page on my blog, and I will forward your request on to Katie. Thank you, Katie, for reinforcing the dangers of drinking during conception and pregnancy.

 


Leave a comment

FASD Visual Aids

Using Visual Aids

While raising grandchildren with Fetal Alcohol Syndrome, visual aids helped them understand “what comes next.” Visual aids are especially helpful for morning and evening routines, such as getting ready for school, and preparing for bedtime.

What are visual aids?

Visual aids are usually pictures specifically created as reminders: toothbrush and paste, hairbrush, medication, pull-ups, clothing etc.; posted on a chart where the child will see them. Initially, and at frequent intervals, the child will require direction on how to apply each routine. Repeating each routine in easy-to-follow steps, until the child is confident to follow the picture prompts without help, is vital for success.

However, if your child with FASD is like my grandchildren with FASD, they might balk at the idea of having large poster-sized visual aids posted around the house, especially when friends come to visit. If so, flash cards showing routines can be effective and less invasive.

Example of Flash Cards

FASD flashcards

FASD flashcards

My FASD memoir links for

  • Two Decades Of Diapers
  • Fetal Alcohol Syndrome, The Teen Years.

http://www.amazon.com/BarbaraStudham

https://www.kobo.com

http://www.barnesandnoble.com

 


Leave a comment

The Dreaded Wait List

Oh, the frustration!

When governments announce a new service to aid children with developmental disabilities, invariably the news quickly trickles down to caregivers overjoyed that “at last” someone has heard their pleas for support and acted accordingly.

The Dreaded Wait List

Trouble is, caregivers are often oblivious to the fact that the new service is bound to be underfunded, and therefore understaffed, causing long wait lists. Add to that, the fact that the child’s disability has to fit a long list of requirements to be eligible for the service, and that services cannot be “doubled-up” which means, should the child be receiving support from one agency, he cannot receive similar help from another. In addition, should an urgent case for the new resource surface, names on the non-urgent list are pushed down a space, making wait times even longer.

Oh, the frustration!

During my twenty years raising grandchildren with FAS, I learned not to hold my breath while waiting for services, especially where the Children’s Aid Society was concerned. Despite their frequent promises of support should I ever need it—which I often did—I was invariably brushed aside due to lack of funding, or told my requirements were outside of their service. Now, as my grandchildren approach adulthood, the DSO (Developmental Services Ontario) referrals for adult services come with guaranteed wait lists. Here we go, again!

FASD Pumpkin

The FASD Pumpkin: Remember some Trick or Treaters have mental challenges.

Be Patient!

Exercising patience while waiting for services is difficult, however, we can demonstrate patience toward all trick-or-treaters this Halloween by remembering there are children in our neighborhoods with developmental, physical, and mental disabilities, and act appropriately when they approach our doors. Despite my protests that my grandchildren are too old to knock on doors for candy, given their mental immaturity, they never outgrow Halloween, so I insist they at least dress the part, thereby giving householders a reason to hand over that much coveted chocolate bar. So, please, if you are approached by teens who you believe are well over the age of trick-or-treating, remember there could be an underlying health reason for their wanting to join in the neighborhood fun.

My author link: http://www.barbarastudham.com


Leave a comment

Pregnancy kits and FASD

Getting the FASD word out!

FASD 2016

FASD 2016. Speak Up, and make this year the last year for FASD.

One problem with FASD is, people are unaware it can be prevented, so here is a thought: One way to let mothers know how to keep their baby FASD free, is to print the words – AVOID ALCOHOL WHEN PREGNANT—not only on the packaging of pregnancy test kits, but on the testing unit itself. Though no method is foolproof, especially when the mother has drunk alcohol before realizing she is pregnant, this one could help. Having that advice printed clearly and in bold letters on the testing unit, could convince a woman who has just discovered she is pregnant, to abstain from alcohol during her pregnancy. What do you think?

A front line perspective on FASD

If you would like a front line perspective on FASD, read my two ebook memoirs, Two Decades of Diapers, and, Fetal Alcohol Syndrome: The Teen Years, both of which address my twenty years raising four grandchildren with Fetal Alcohol Syndrome. and available from your Amazon, these links, and many other ebook distributors. Both are only .99 cents (usd).

http://www.amazon.com/author/barbarastudham

https://www.store.kobobooks.com

http://www.barnesandnoble.com