Challenged Hope

Grandmother raising Grandchildren with FASD in Hamilton Ontario Canada


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The Dreaded Wait List

Oh, the frustration!

When governments announce a new service to aid children with developmental disabilities, invariably the news quickly trickles down to caregivers overjoyed that “at last” someone has heard their pleas for support and acted accordingly.

The Dreaded Wait List

Trouble is, caregivers are often oblivious to the fact that the new service is bound to be underfunded, and therefore understaffed, causing long wait lists. Add to that, the fact that the child’s disability has to fit a long list of requirements to be eligible for the service, and that services cannot be “doubled-up” which means, should the child be receiving support from one agency, he cannot receive similar help from another. In addition, should an urgent case for the new resource surface, names on the non-urgent list are pushed down a space, making wait times even longer.

Oh, the frustration!

During my twenty years raising grandchildren with FAS, I learned not to hold my breath while waiting for services, especially where the Children’s Aid Society was concerned. Despite their frequent promises of support should I ever need it—which I often did—I was invariably brushed aside due to lack of funding, or told my requirements were outside of their service. Now, as my grandchildren approach adulthood, the DSO (Developmental Services Ontario) referrals for adult services come with guaranteed wait lists. Here we go, again!

FASD Pumpkin

The FASD Pumpkin: Remember some Trick or Treaters have mental challenges.

Be Patient!

Exercising patience while waiting for services is difficult, however, we can demonstrate patience toward all trick-or-treaters this Halloween by remembering there are children in our neighborhoods with developmental, physical, and mental disabilities, and act appropriately when they approach our doors. Despite my protests that my grandchildren are too old to knock on doors for candy, given their mental immaturity, they never outgrow Halloween, so I insist they at least dress the part, thereby giving householders a reason to hand over that much coveted chocolate bar. So, please, if you are approached by teens who you believe are well over the age of trick-or-treating, remember there could be an underlying health reason for their wanting to join in the neighborhood fun.

My author link: http://www.barbarastudham.com

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Hallowe’en and FASD

Kids with FASD enjoy Hallowe’en, too!

FASD Pumpkin

The FASD Pumpkin: Remember some Trick or Treaters have mental difficulties

 

Hallowe’en and FASD

When you are handing out candies this Hallowe’en, please remember some trick or treaters might have FASD and be over-the-top exuberant. So to avoid turning ghosties or vampires into real-life monsters, please check out these tips.

  1. Many children with FASD have poor vision, so keep your porch and driveway well lit to avoid tumbles on your property.
  2. Avoid growing angry if a trick or treater pushes through the crowd for candy. Children with FASD don’t always understand rules of etiquette but are afraid of being left out.
  3. Over-exuberance can cause loud noises. But they are simply whoops of enjoyment from kids rarely involved in neighborhood events.
  4. Many children with FASD function lower than their chronological age, so if some “big kids” knock on your door, don’t panic. After all, it’s only one candy.
  5. Don’t put down kids costumes. Many caregivers of children with FASD encourage them to make their own costumes. So if a vampire has green blood, or Spiderman got confused with Superman, brush it aside.
  6. Hallowe’en is a fun night for kids with FASD as they don’t need an invitation. Unlike birthday parties, it’s for everyone, so don’t get mad if they don’t say please or thank you for the candy, or run across your lawn. When overly excited to be part of the crowd, they tend to forget their manners.

Hallowe’en and FASD: Remember, FASD is no laughing matter!

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