Challenged Hope

Grandmother raising Grandchildren with FASD in Hamilton Ontario Canada


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Great Expectations

Fetal Alcohol Syndrome is preventable, not curable.

FASD 2016

FASD 2016. Speak Up, and make this year the last year for FASD.

 

After twenty years of raising four grandchildren with Fetal Alcohol Syndrome, my care-giving duties are winding down and will eventually end. For my grandchildren, however, FAS will never end. For their entire lives, they will wake up each day facing mental illness. My heart cries for them, especially when FAS is preventable.

Great Expectations

Societies’ expectations for individuals with FAS to overcome the challenges associated with mental illness and achieve success are considerable. However, despite my intense care-giving, their special education, and services they receive for people with mental disabilities, every day, my grandchildren struggle to fulfill the basics of daily living, let alone have the ability to reach some idealized expectation placed upon them by the world. Why waste time setting far-fetched goals for people with FAS? Instead, learn about the disability, their individual needs, complex behaviors, social skills, and learning disabilities, and, despite the limitations of mental illness, strive to make them feel worthwhile within their communities.

My Memoirs

For a limited time, my two memoirs describing the twenty years I raised my grandchildren with FAS, are FREE to download to an e-reader from my website:

http://www.twodecadesofdiapers.com.

They are also available to purchase from Amazon, Kobo, Barnes and Noble, and other ebook distributors.


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Upcoming Events

Watch for these upcoming events!

  • Upcoming Event: Sunday, March 13th 2016. 7:00-8:00 pm

I will be speaking about my memoirs and FASD on ARTWAVES: a live radio broadcast from Mohawk College. ARTWAVES is an arts interview radio program which airs live every Sunday, from 7-8 pm, at 101.5 FM. Google “l0l5 The Hawk” to listen to the program in real time, or listen to podcasts at archives.org/details/artwaves.

  • Upcoming Event: Thursday, March 24th 2016, 7:00-8:30 pm

I will be hosting an FASD event evening at Turner Park Library, Hamilton, Ontario. Speakers will include Mark Courtepatte and Savanna Petriano from Hamilton FASD Caregivers Support Group, and Tim Groenewegen, a special needs educator with the HWDSB. Together we hope to bring information, guidance, and support to those interested in learning about FASD, its symptoms, challenges, and services. Event is free.

Download my two memoirs for FREE from my website

http://www.twodecadesofdiapers.com

Two Decades Of Diapers

Fetal Alcohol Syndrome: The Teen Years

Also see me on Youtube

Twitter: @barbarastudham

 


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Upcoming Events, not to be missed!

New Events!

Upcoming Events, not to be missed! The following events were posted by Mark and Savanna, co-founders of Hamilton FASD Parent & Caregiver Support Group.

Their contact info:

Upcoming Events, not to be missed!

Fascets Canada – Demystifying FASD and other Neurobehavioural Conditions

Special 2 Day Training for Professionals and Caregivers!

  • When: February 29th and March 1st, 2016
  • Where: Carmen’s Banquet Centre,  1520 Stone Church Road, Hamilton
  • Time: 8:30am to 4:30pm
  • Cost: $260.00 for both days  ($150 for parents & caregivers)
  • (Registration cost includes continental breakfast and full lunches on both days)
  • Registration Closes: February 12, 2016

Please see http://www.hamiltonfasdsupport.ca for more information.

Upcoming Events, not to be missed!

There is an FASD Conference in Sault St. Marie on Tuesday October 27Thursday October 29, 2015

Cost: $50 for the conference, includes lunch and refreshment breaks.  Note: Limited bursaries may be available for parents of/ or individuals living with FASD as well as graduates of AEI program. Maximum bursary amount: $500/ family.
Keynotes include:
  • Dr. Edward Riley, FASD- An Update on Recent Research and New Developments
  • Dr. Sterling Clarren– New Canadian Guildelines for Screening and Diagnosis
  • Dr. Lori Vitale Cox– Medicine Wheel Toolkit
  • Myles Himmelreich– What to Expect During a Full Body Diagnosis

Workshops and Sessions Include:

  • Seeing Through the Eyes of your Heart- Rebecca Martel & Jean Tait
  • Parent Child Assistance Program From a Rural Perspective- Tracey Knowlton
  • Heart Work, Long Ours Quilt- Cindy Peltier & Alison Trantor
  • Healing our Hearts, Accommodating our People- Richard Willier
  • ‘Cause It’s Still Not My Fault: Applying Best Practices for Students with FASD in the Classroom- Allan Mountford
  • Living Outside the Box- Tina Andrews
  • How to Communicate a Diagnosis of FASD to Children and Youth- Dr. Brenda Stade
  • Let’s Set the Stage- Debbie Michaud & Rhonda Konrad
  • Panel Discussion – Savanna along with RJ Formanek (FB FLying with Broken Wings), James Gideon and Matt Sinclair.

For information on any of the above events, please contact Mark & Savanna at:


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Event: Group for FASD Youth & Siblings

A very successful group for youths 10-20 years of age with FASD, and their siblings, has opened up in Hamilton, Ontario.

Founders, Mark Courtepatte and Savanna Pietrantonio had this to say—

“To the best of our knowledge, we believe that this is the first Youth & Sibling Support Group in Ontario … and possibly Canada, or the world!  There are a lot of groups that have the youth and siblings join with the parents and caregivers (as we do with our parent and caregiver support group), however we believe this is the first group solely focused on supporting youth with FASD and their non-FASD siblings.  It is just for them!”

Some of the goals set for the group:

  1. Providing an environment that will allow youths with FASD to feel comfortable, normal, and accepted. They will be with peers and other youth who share a strong commonality.
  2. Allow youth with FASD to make friends with peers more likely be more open and understanding.
  3. Help youth to learn and better understand FASD together.
  4. Have fun!

For more information on the FASD Youth and Sibling group in Hamilton, Ontario, please visit www.hamiltonfasdsupport.ca or email: Hamilton.FASD@gmail.com

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My memoir: Two Decades Of Diapers describes my twenty years raising grandchildren with Fetal Alcohol Syndrome.

Available in paperback and ebook from:

Also available in ebook format from:


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Events

Event information received from:
Hamilton FASD Parent & Caregiver Support Group
eMail:      Hamilton.FASD@gmail.com
NEW WEBSITE!:  http://www.hamiltonfasdsupport.ca
Registration is required for all events

March 28th Parent conference – in Toronto hosted by FASD ONE at Toronto CAS.  The cost is $30.  Information on registering is on the flyer (see link below).  Pre-registration is required as space is limited.  Thanks to FASD ONE for this opportunity (and sincere thanks to the London FASD E.L.M.O. Support Group for the info reminder).  Click on following link for Registration form TO March 28th – FASD ONE

April 9 FASD 1 oh! 1 with Jeff Noble (FASD Forever) – full day training.  Location: Mississauga  Symphony Event Center  (FREE parking) Registration will begin at 8:30am.  Training will start at 9am and run until 4:30pm.  Cost: $75 for the full day training.  Registration info: http://www.eventbrite.ca/e/fasd-1oh1-tickets-15919361238  Maximum of 100 registrants available.

April 17 – RJ Formanek – Facebook Flying With Broken Wings FASD Support Group – is coming to the Hamilton FASD Parent & Caregiver Support Group.   The event is 7:00-9:00 pm at the Hamilton Mountain Police Station.  PLEASE CONFIRM IF YOU ARE PLANNING TO ATTEND AS SPACE IS LIMITED.  See attached for further details and information on the event!

April 7, 14, 21 – FASD Education and Training Part 1: Three Part Training Series:  Series 1:The Basics: Understanding FASD, Series 2: FASD Intervention Principles-Best Pracitces “What to do when…”, Series 3: Advocacy-Promoting School success and Transition to Adulthood.  ** Cost: free for caregivers (see flyers for cost for professionals).  SPACE IS LIMITED – Please Contact:  Brenda McBride, Catholic Family Services, Hamilton, ON.  Contact:  905-527-3823 ext. 259  or bmcbride@cfshw.com

PLEASE NOTE: THIS EVENT HAS BEEN CANCELLED: April 21, 15 and May 5 – FASD Education and Training Part 2: FASD Next Steps: Three Part Training Series: Session 1: Grief and Loss, Session 2: Strategies and Interventions, Session 3: Transition to Adulthood  Note: to attend this training completion of Part 1 training is required.  ** Cost: free for caregivers (see flyers for cost for professionals).  SPACE IS LIMITED – Please Contact:  Brenda McBride, Catholic Family Services, Hamilton, ON  Contact: 905-527-3823 ext. 259  or bmcbride@cfshw.com